arf4sma latest news

Belle's Ball 2023 - Belle's Potter Ball

Sun, 30 Oct 2022 20:13:34 GMT

A magical ball celebrating our 14th year!

Belle's Potter Ball will be held on Saturday 28th October 2023 from 6pm onwards at the Manor of Groves Hotel.
Tickets are at the price of £75 per head and will include:

Reception drink on arrival,

• 2 course meal with half a bottle of wine per person
• Tea and coffee.

The meal will be followed by a raffle and auction with additional entertainment throughout the evening.

All proceeds will go to The Annabelle Rose Foundation for Spinal Muscular Atrophy.
We would like to thank you for all your support over the past years and we look forward to seeing you all again.

Age restrictions apply: Event for Ages 18+

Please contact us for tickets

Please visit our Events Page to be added to the reservations list!

Belle's Ball 2022 - SOLD OUT!

Tue, 06 Sep 2022 21:40:23 GMT

As it stands - Belles Ball is now sold out. We have started a reservation list for those that want tickets if any become available.

A spine-chilling Ball celebrating our 13th Year! (Fancy Dress/Theme attire encouraged!)

Belle's Fright Night Ball will be held on Saturday 29th October 2022 from 6pm onwards at the Manor of Groves Hotel.

Tickets are at the price of £75 per head and will include:

• Reception drink on arrival,

• 2 course meal with half a bottle of wine per person

• Tea and coffee.

The meal will be followed by a raffle and auction with additional entertainment throughout the evening.

Age restrictions apply: Event for Ages 18+

All proceeds will go to The Annabelle Rose Foundation for Spinal Muscular Atrophy.

We would like to thank you for all your support over the past years and we look forward to seeing you all again.

Please contact us if you want to be added to the reservations list!

Send personalised eCards online for any occasion to help raise funds for The Annabelle Rose Foundation!

Tue, 21 Dec 2021 23:19:56 GMT

Did you know that you can now support us by sending e-cards instead of greeting cards?

Switch to ecards, help our charity, and save the planet. We've teamed up with DontSendMeACard where you can support our charity by giving what it would have cost to send cards.

With DontSendMeACard you can create customised e-cards to send for special occasions and give the cost of cards and stamps to our charity.

Loved ones receive customised e-cards
Help our charity in lieu of cards
You're only giving what you would have spent on cards anyway

Much easier than sending cards. Everyone will see that you donated too!

View our page > https://www.dontsendmeacard.com/ecards/charities/the-annabelle-rose-foundation

Jingle Belle Bop CANCELLED

Thu, 16 Dec 2021 02:18:24 GMT

We regret to inform you that Jingle Belle Bop has been cancelled.

As we’re sure you’re already aware, the coronavirus (COVID-19) pandemic and recent Omicron variant has meant that it’s now vital to limit social contact and avoid gathering. For that reason, we’ve made the difficult decision to cancel Belle's Jingle Belle Bop. While we know this is disappointing, we hope you can understand the steps we’re taking to help keep our Trustees, Volunteers and attendees safe.

What happens next?

W e will shortly be in contact with all ticket purchasers to discuss options.

If you have any questions or concerns, please get in touch here: https://www.annabellerosefoundation.co.uk/contact

Thank you for your interest in Jingle Belle Bop, and for your understanding during these unprecedented times. To find out more about the virus and how you can do your bit, visit the NHS, Gov.uk, or WHO websites.

Thank you for your continued support and we hope to see you at our next event in the future!

Prime Day 2021

Mon, 21 Jun 2021 13:13:30 GMT

Want to help us at no extra cost to you?!

Prime members who shop Amazon Prime Day deals from 21st – 22nd June can do more than discover great deals: Simply shop at smile.amazon.co.uk/ch/1139272-0 or with AmazonSmile ON in the Amazon Shopping app, and AmazonSmile will DOUBLE donations to The Annabelle Rose Foundation For Spinal Muscular Atrophy!!! Not bad eh! #amazon #amazonsmile #primeday2021 #primeday #arf4sma

Belle's Ball 2021 - Deposits

Sat, 08 May 2021 14:28:17 GMT

Deposits/ ticket money for Belles Ball is due. If you choose to pay a deposit now for tickets they need paying for by the end of July in full. Please contact us (Below) for payment details.

This will be the party of the year! As you all know last year was the first in 12 years we were unable to hold a ball... we promise you this will be worth the wait.

Belle's 50's Ball will be held on Saturday 18th September 2021 from 6pm onwards at the Manor of Groves Hotel.

Tickets will remain at the price of £70 per head and will include:

• Reception drink on arrival,

• 2 course meal with half a bottle of wine per person

• Tea and coffee.

The meal will be followed by a raffle and auction with additional entertainment throughout the evening.

All proceeds will go to The Annabelle Rose Foundation for Spinal Muscular Atrophy.

We would like to thank you for all your support over the past years and we look forward to seeing you all again.

Please contact us if you want to be added to the reservations list!

Belle's Ball 2021 - SOLD OUT!

Fri, 12 Mar 2021 22:51:41 GMT

As it stands - Belles Ball is now sold out. We have started a reservation list for those that want tickets if any come available.

This will be the party of the year! As you all know last year was the first in 12 years we were unable to hold a ball... we promise you this will be worth the wait.

Belle's 50's Ball will be held on Saturday 18th September 2021 from 6pm onwards at the Manor of Groves Hotel.

Tickets will remain at the price of £70 per head and will include:

• Reception drink on arrival,

• 2 course meal with half a bottle of wine per person

• Tea and coffee.

The meal will be followed by a raffle and auction with additional entertainment throughout the evening.

All proceeds will go to The Annabelle Rose Foundation for Spinal Muscular Atrophy.

We would like to thank you for all your support over the past years and we look forward to seeing you all again.

Please contact us if you want to be added to the reservations list!

Breaking News...... Zolgensma NHSE announcement

Thu, 11 Mar 2021 11:20:53 GMT

The 8th of March Was a historic day!

We are so happy to announce that NHSE and Novartis Gene have reached an agreement which will enable families in England to have access to gene therapy for Spinal Muscular Atrophy - one of the most expensive treatments in England on the NHS.

This was our first sitting on a panel when approving a drug along with two other SMA Charities, stakeholders and professionals.

Like Spinraza there will be stipulations as to who can receive it. Please read further by clicking here

Welcome to the new website

Thu, 11 Mar 2021 11:04:49 GMT

Welcome to our new look website!

We think its pretty, please have a look around.

If there's something not quite right do let us know and we'll fix it! .. We could sack our web wizard , but he's a volunteer............. so we are stuck with him!