The Annabelle Rose Foundation for Spinal Muscular Atrophy is a charity
registered in the UK, founded in Febuary 2010 by Charlotte & Wayne Burfitt. The Annabelle Rose Foundation are dedicated to providing help & support to families affected by Spinal Muscular Atrophy (SMA).
Our objectives/aims are to:
(i) Provide relief of persons suffering from SPINAL MUSCULAR ATROPHY and related conditions.
(ii) Provide relief in cases of psychological and emotional distress of the parents and guardians and other relatives of such persons or of such persons who are deceased.
(iii) Support the promotion of research into the causes and treatment of SPINAL MUSCULAR ATROPHY subject to the publication of the useful results of such research.