Practical relief
Funding home and car adaptations, specialist medical equipment and toys that make everyday life easier, safer and a little more joyful.
Supporting families across the UK
A softer landing for families facing SMA
Support for families facing SMA
Spinal muscular atrophy changes family life overnight. The Annabelle Rose Foundation steps in with practical help, emotional support and funding for research, for as long as it is needed.
What we do
Help that reaches the parts of life SMA touches
Around 1 in 6,000 babies is born with spinal muscular atrophy. Every family's needs look different, so our support is shaped around the person, not the paperwork.
How we help in detailTime together
Short holidays and memory-making for families facing a short prognosis, so that time together can be spent being together.
Beside you
Emotional support for parents, guardians and relatives, help with funeral costs and arrangements, and donations towards research.
Our story
Named after a little girl, run by a family who needed help too
The Annabelle Rose Foundation exists because of Annabelle Rose and the family who loved her. They know how quickly a diagnosis turns into appointments, adaptations, hospital stays and hard decisions, and how much difference one practical offer of help can make.
So we fund the things that make daily life easier, give families time away together, and stay close through the hardest moments. We also give to research, because the future should hold more answers than the present does.
Read our storyThe shop
Small things that do a lot of good
Thoughtful clothing, keepsakes and awareness gifts. Every order goes straight back into our work with SMA families.
For families
However SMA has touched your life, you do not have to work it out alone
Whether you are newly diagnosed, years into the journey, or grieving, there is someone here who understands. Tell us what would help and we will do our best.
Ways to help
Buy something lovely, or simply give
Shop for a gift with meaning, or make a one-off donation. Both keep our grants, holidays and family support running.